CHRONIC DISEASE: 3 TIPS FOR EMBRACING YOUR FOOD PLAN

I recently attended the Presidentโ€™s Summit for the Crohnโ€™s & Colitis Foundationโ€”my son Clay was diagnosed with severe Crohnโ€™s disease in 2016, and I serve as the local chapter board President. As I read the conference agenda, I was very excited about a session on the latest research on diet.

First, letโ€™s clear this up: there is no Crohnโ€™s diet. There are no research studies that conclusively connect diet with IBD remission, flare reduction or cure. However, diet is important. Getting in the driverโ€™s seat in regard to self careโ€”this includes dietโ€”can provide greater quality of life.

Back to the conferenceโ€ฆ

As I listened to this researcher talk about the impressive amount of data collected on various diets (Mediterranean Diet, Specific Carbohydrate Diet and others,) there was an overall, looming sense that adopting these food plans was going to be really, really terrible. The words aloneโ€””elimination,โ€ โ€œforbidden foods,โ€ โ€œrestrictionโ€โ€”conjured a sad, unappetizing and isolated world. One slide featured foods with giant red Xโ€™s on them, and this roused murmurs and snickers all around me. One guy muttered, โ€œI guess Iโ€™ll never eat cake again.โ€ Another said, โ€œDeal breaker.โ€ I imagined Registered Dieticians, folding food plan printouts, slowly sliding them across the desk to their IBD patients while avoiding eye contact, as if delivering a life sentence.

This sort of response is not new to me. I hear it nearly every day in my shop and cooking classes. When folks have a prescribed food plan to address a health issue, they almost always operate from a space of negativity and lack and use doom and gloom language. We seldom hear, โ€œI have hypertension, and I have a food plan that could save my life!โ€œ Rather, we hear: โ€œIโ€™ll never, ever eat another potato chipโ€ or โ€œMy life is now exactly zero funโ€ or โ€œThere is no way I can do this.โ€ They hold the tools to heal their own body (a flat-out miracle,) but itโ€™s seen as a life sentence.

Here’s the thing, I can teach a cooking class on any food protocol from any list of allowed foods, and that class will be big fun and rich with info, ideas and recipes for delicious meals. How do I do this? I approach all cooking and eating from a place of robust abundance. When I see a food list, all I see are possibilities. It was the same at the conference. While others around me heard, “no cake for you,” I heard, “here’s what’s possible.”

My personal experience with my sonโ€™s food plan is a great example. As we explored the Low FODMAP diet (a diet developed to treat IBS that is often suggested to folks with IBD,) I approached it from a place of excited, hopeful discovery. With hope that the diet could improve his functional symptoms, we spent time reading Monash University’s FODMAP research and downloaded the app. We spent zero time discussing restricted or “red X” foods. Because what good does that do? What purpose is served in ruminating about not being able to eat Skittles?

My “food plan life sentence” joke is funny. And itโ€™s not. Crohnโ€™s disease is a life sentence, and there is ample negative talk around diagnosis, treatment and long-term outlook. Letโ€™s change the conversation where we can. Let’s talk about lifestyle changesโ€”like dietโ€”from a space of positive, rich abundance. Letโ€™s talk about diet in the same way we talk about other forms of self care like yoga, meditation and taking on a hobby. Less life sentence. More life changing. Tweak the words. Change the approach. Itโ€™s a game changer.

Here are my 3 tips for folks living with Chronic Disease on embracing their prescribed food plan:

  1. Cook your own meals. Cooking at home from whole ingredients is where itโ€™s at. Preparing meals at home is connected to better health outcomes, increased mental health, better social and family connections, decreased truancy, longevity, the list goes on and on and on. Trying to match your food plan with packaged/processed food, restaurant menus or fast food will cause frustration and powerlessness. Focus your efforts in your kitchenโ€”there is massive power in the work of creating your own meals. Harness that power.
  2. Share with othersโ€”In our family, we all eat the same meals. There isnโ€™t an โ€œIBD friendlyโ€ plate for Clay while we dine on โ€œforbiddenโ€ foods. When you come from a space of big, juicy positive love for your food plan, you will make big, juicy yummy meals that fuel and nourish and satisfy, AND you will want you to share all that deliciousness. Do not isolate and eat on โ€œyour meal plan.โ€ Invite folks over. Serve those scrumptious dishes to friends and family. When you remove โ€œI canโ€™t have,โ€ from your vocabulary and replace it with โ€œwhat can I create today,โ€ the floodgates will open up and you will create delicious food.
  3. Ask for what you needโ€”Healthcare practitioners work hard to provide superlative patient care and create positive outcomes. Tell them your food plan approach, and ask for help. Ask your dietician to bring in a cooking instructor. Ask your cooking instructor to bring in a dietician. Ask your support group to take a cooking class. Ask your family to learn about your food plan. Ask your mom to research recipes (moms are good at researchโ€”trust me.) Ask message boards and sub reddits and Facebook groups and Instagram posts and all the interwebs for ideas and inspiration and help. Ask me. There are tons of people listening and ready to help. Ask.

Check out this link to Clay’s favorite FODMAP friendly tacos. They’re delicious, and they feed a crowd. Invite friends over, and share a meal!  

Have questions about your IBD diagnosis? The Crohn’s and Colitis Foundation website is a world of information. Find out about support groupsread patient stories and get your questions answered. You can also connect with me. I’m a great listener. 

Share:

Facebook
Twitter
Pinterest

About author

Picture of Anne Milneck

Anne Milneck

Owner and Chef at Red Stick Spice Company. Spice Girl and Champion of Home Cooks.

Leave a Reply

Leave a Comment

Your email address will not be published. Required fields are marked *

*